不挑选、不隐藏。以下含仍在干预中、以及结果存在边界性的个案,每一个数字都可回溯到医院书面报告。
Nothing cherry-picked, nothing hidden — including cases still in progress and borderline outcomes. Every figure traces back to a written hospital report.
所有量表数值严格引自医院书面报告原文,无估算、无补填,缺失即标注“——”。
All values quoted verbatim from hospital reports; missing data marked “——”, never estimated.
仅有口头告知、无书面复查报告的个案,已从数据库整体剔除。
Cases lacking written re-evaluation were removed entirely.
“脱离诊断”仅以医院书面复查报告的明确记录为准。
“No longer meeting criteria” relies solely on written hospital re-evaluation.
ZM001–ZM017 全部使用编号与化名,不披露可识别身份信息。
All cases use codes and pseudonyms; no identifying information is disclosed.
“最新智商/发育商”依原始报告工具而定;“——”表示该项无医院书面记录。
“Latest IQ/DQ” depends on the instrument used in the original report; “——” means no written hospital record for that item.
| 编号 | Code | 性别 | Sex | 确诊月龄 | Age at dx (mo) | 严重程度 | Severity | 确诊量表 | Dx scales | 最新量表 | Latest scales | 最新IQ/DQ | Latest IQ/DQ | 当前状态 | Status |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| ZM001 | 男 | M | 45 | 中度 | Moderate | ADOS-2 18 | ADOS-2 3 | 102 | 不再符合诊断Off-criteria | ||||||
| ZM002 | 男 | M | 25 | 重度疑似 | Severe (susp.) | 发育商 66 | DQ 66 | 韦氏 99 | WISC 99 | 99 | 正常范围Typical range | ||||
| ZM003 | 女 | F | 47 | 重度 | Severe | ADOS-2 16 | ADOS-2 4 | 78 | 不再符合诊断Off-criteria | ||||||
| ZM004 | 女 | F | 35 | 轻度 | Mild | ADOS-2 比较分3 | ADOS-2 CS 3 | 比较分2 | CS 2 | 104 | 极轻/无证据Minimal | ||||
| ZM005 | 男 | M | 28 | 中度 | Moderate | ADOS-2 12 / CARS 33 | ADOS-2 8 / CARS 18 | 98 | 干预中In progress | ||||||
| ZM006 | 男 | M | 50 | 重度 | Severe | ADOS-2 17 | ADOS-2 17 | CARS 27 / ABC 23 | CARS 27 / ABC 23 | 77 | 不再符合诊断Off-criteria | ||||
| ZM007 | 男 | M | 43 | 重度 | Severe | ADOS-2 18 / CARS 36 | 脱离诊断 | Off-criteria | 77 | 干预中In progress | |||||
| ZM008 | 女 | F | 31 | 重度 | Severe | 临床确诊 | Clinical dx | CARS 17 / ABC 18 | 126 | 无明显症状Off-criteria | |||||
| ZM009 | 男 | M | 28 | 中度 | Moderate | ADOS-2 18 / CARS 30 | CARS 27.5 / ABC 62 | 73 | 非孤独症Off-criteria | ||||||
| ZM010 | 男 | M | 48 | 中度 | Moderate | ADOS-2 比较分5 / CARS 31 | ADOS-2 CS 5 / CARS 31 | 比较分1 | CS 1 | 117 | 干预中In progress | ||||
| ZM011 | 男 | M | 21 | 中度偏重 | Mod-severe | ADOS-2 16 | ADOS-2 16 | CARS 24 | —— | 干预中In progress | |||||
| ZM012 | 女 | F | 48 | 轻-中度 | Mild-mod | CARS 31 / ABC ~63 | ADOS-2 1 | —— | 不再符合诊断Off-criteria | ||||||
| ZM013 | 女 | F | 40 | 轻度 | Mild | ADOS-2 9 | ADOS-2 2 / CARS 23.5 | 发育商 85 | DQ 85 | 干预中In progress | |||||
| ZM014 | 女 | F | 24 | 中度 | Moderate | ABC 75 / 警示28 | ABC 75 | 警示 0 | Alert 0 | 101 | 不再符合诊断Off-criteria | ||||
| ZM015 | 男 | M | 31 | 中度偏重 | Mod-severe | ADOS-2 22 | CARS 28 / ABC 9 | 104 | 干预中In progress | ||||||
| ZM016 | 男 | M | 24 | 中度 | Moderate | ADOS-2 8 / ABC 70 | 比较分1 | CS 1 | 100 | 不再符合诊断Off-criteria | |||||
| ZM017 | 男 | M | 40 | 中度 | Moderate | ADOS-2 14 | ADOS-2 7 / CARS 26 | 114 | CARS非孤独症(边界)Borderline |
重要说明:以上 17 例为自愿参与、已取得进展或完成课程的家庭,属于自我选择样本,存在明显的选择偏倚。本表仅作描述性呈现,不计算“有效率”,不能据此推断方法的因果疗效。“不再符合诊断标准”指经医院书面复查不再满足孤独症医学诊断标准,并非“治愈”。部分个案仍在干预中或结果存在边界性,已如实标注。
Important: These 17 cases are a self-selected sample with clear selection bias (families who volunteered and made progress or completed the program). This table is descriptive only; no “success rate” is calculated and no causal efficacy can be inferred. “No longer meeting criteria” means a written hospital re-evaluation no longer met ASD diagnostic criteria — not a “cure.” Cases still in progress or with borderline results are labeled as such.
“获取光明,对普通孩子只是抬头的事,对我们的孩子,却需要站到喜马拉雅山岗。”
“For a typical child, reaching the light is as simple as lifting the head; for ours, it meant climbing to the peak of the Himalayas.”
“孤独症三个字,曾像冰锥狠狠刺进我的心脏。而现在,她在班里当上了升旗手。”
“The word ‘autism’ once pierced my heart like ice. Now she raises the flag at school.”
“三年换一个娃,一日不多,一日不少。那句‘我练得太累了,但我还能坚持’,值了。”
“Three years to bring my child back — not a day more or less. ‘I’m so tired, but I can keep going’ — it was worth it.”
“让沉睡的灵魂慢慢苏醒,让封闭的世界渐渐光亮。这条路,我们走过来了。”
“A sleeping soul slowly awakens; a closed world gradually brightens. We made it through.”
这些话不是证据,量表和报告才是。但它们是这条路上,真实走过的人留下的脚印。
These words are not evidence — the scales and reports are. But they are the footprints of those who truly walked this road.